Joel was diagnosed with an atypical teratoid rhabdoid tumor, a particularly invasive form of brain cancer. He was treated with radiation and chemotherapy, but now a doctor, fighting back his tears, is explaining that the tumor has returned. Little Joel will not survive. It is just a matter of time.
For the last three years, Ryan, a game designer, has been working with a team of coders and artists on "That Dragon, Cancer" a kind of interactive biopic, exploring his son’s life and the experience of caring for him. The game takes the form of a “point and click” adventure, built around his family’s memories.
It began with a book Amy (mother) wrote to explain Joel’s situation to the couple’s four young sons. In it, she depicts his struggle as a mythical battle, with his cancer portrayed as a terrifying dragon. The game is touching and also, there are wits in some scenes too.
Joel died on March last year. He died after fighting a succession of tumors over four years, after relearning to walk and speak several times.
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